Just a quick breakdown of B's illness, meds, and past medical history for easy reference.
HOSPITALIZATIONS:
9/25/12 (Birth)- 10/4/12 @ WCHOB NICU
10/8/12 - 12/15/12 @ WCHOB PICU/V4
1/3/13 - 1/10/13 @ WCHOB V4
1/21/13 - 1/26/13 @ WCHOB V4
1/26/13 - 2/13/13 @ BCH MICU/6E (Transfer from WCHOB)
2/14/13 - present @ WCHOB PICU/V4
HISTORY:
35 week preemie; hydrops; neonatal jaundice; PFO & PDA murmurs; 9 day NICU stay; surfactant protein C deficiency (extremely rare genetically inherited interstitial lung disease); GERD; warm antibody autoimmune hemolytic anemia; failure to thrive; acute hyperbilirubinemia; hepatosplenomegaly; giant cell hepatitis
TESTS/PROCEDURES:
Infasurf treatment x 3; 60+ packed red blood cell transfusions; PICC line; central line (IJ); platelet transfusion; complete exchange transfusion x 2; bronchoscopy; bronchoalveolar lavage; 40+ xrays; echocardiogram x 4; upper GI series; barium swallow study; bone marrow aspiration & biopsy; G tube; Nissen wrap; weekly IVIG therapy; liver biopsy; full body MRI; 24-hour chelation therapy; immunosupressive therapy; J tube.
MEDICATIONS:
Prednisolone; Rituximab; Azithromycin; Bactrum; Prevacid; Simethicone; Deferoxamine; Actigall; folic acid; Cellcept; Pregestimil 24kcal
TREATING HOSPITALS & PHYSICIANS:
Women & Children's Hospital of Buffalo, Buffalo NY
Boston Children's Hospital, Boston MA
Primary Doctor: Dr Jennifer Miller - WNY Pediatrics
Hematologist: Dr Meghan Higman, WCHOB & Dr's Ellis Neufeld & Julia Chu, BCH
Hepatologist: Dr Coleen Nugent, WCHOB & Dr Rima Fawaz, BCH
Pulmonologist: Dr Daniel Sheehan, WCHOB & Dr's Dennis Rosen & Gary Visner, BCH
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