The amount of coordinating that has gone into getting B home this week is absolutely crazy. Seriously, small countries are probably run with less effort, lol.
Yesterday the home supply company for B's oxygen was having a problem billing his insurance. They called me and said that IHA is saying Brady does not have coverage and I need to call them. So I called IHA and they told me they never received any information on Brady, didn't even know we had had a baby. Great. Turns out Tim's HR person misfiled Brady's enrollment forms and they were never submitted. I spent the entire morning on the phone with the benefits manager straightening everything out and getting him enrolled but he is officially covered under IHA, thank goodness!!
So last night the company delivered B's oxygen compressor and portable tanks. This afternoon they came and showed me how to use the compressor, the tanks, his pulse oximeter and also to go over infant CPR. I tried to set up delivery of his feeding pump & supplies and his IV pump & PICC supplies but due to crazy issues with insurance coverage they won't deliver "home care" supplies before his discharge papers are signed. So Friday will be even more hectic trying to get everything situated at home as quickly as possible. I'm nervous because B gets a continuous feed through a pump. If VNA is late delivering he will get behind on his nutrition requirements and because he's already so far behind growth wise, that's a big deal for him. Fingers crossed VNA comes when they say they will.
It's been quite a task setting him up with all of his outpatient appointments, getting all his meds filled, coordinating his homecare nursing, and all the supplies he'll need. He'll be at the hospital for blood transfusions as needed, most likely every 2-3 days, he'll get IVIG in the infusion clinic every Thursday and he'll need to be followed by: lung center, hematology, cardiology, surgery, GI, feeding clinic, neurology, hearing clinic, and early intervention -- that's A LOT of appointments! Right now, Brady is a full time job!! haha...But it will all be worth is when we get to snuggle him and all be together at home. I can't wait!
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