NOT pneumonia

Final conclusion from Lung Center: NOT pneumonia. They say it is either a mucus plug or a small area of atelectasis, both common issues with interstitial lung disease. So, they're now trying once again to explain to the anesthesiology team that he does not have pneumonia and is not any more of a risk to go under than he ever is. Haven't heard a response but keeping my fingers crossed that they finally relent!

New problem though. A few hours ago Bug's nurse Kristen and I noticed that his belly was starting to look distended. Now, in the last hour & a half its so distended that his belly button is popping outward and its pushing his gtube out. The docs on the floor just ordered a bunch of blood work and he'll probably get an abdominal ultrasound to try and get a handle on what's going on. I swear, it never ends!!!

Its been so bad lately here. Yesterday I talked to another children's hospital in Boston and they're opinion is that B belongs in intensive care. They wanted us to initiate a transfer and have B airlifted to their ICU immediately. I had Dr. Higman paged and told her we were seriously ready to request a transfer. Surprisingly, she said she had already been considering it herself. She asked that, so long as B does not worsen before then, that we give her one more week to try this new blood theory/treatment plan. If by the end of next week he is not doing SIGNIFICANTLY better then she will give her blessing for a transfer, help us choose which hospital would be best suited for his needs, and coordinate the whole process with us. So we agreed to give it a shot. ONE WEEK. If Bug seems to be sliding downhill before then though, all bets are off. It will be very difficult to separate our family and be out of state with Brady but priority number one is making sure he is getting the best care possible so we will do whatever we need to. Pray pray pray it doesn't come to that though!!!

I'll update again later if I can. If I don't have time to get here I almost always take a minute to make important update to his Facebook page so go "like" there for more up-to-date information.

Lots of love, Shari ♥