Saturday, February 2, 2013

The wait is on

Bug's biopsy went really well yesterday. They used moderate sedation so that he wouldn't need to be intubated. He was in the OR about two hours and after a quick half hour in recovery we were back in his room. His pain didn't seem too bad. He had two doses of morphine and thanks to the anesthetic in his system he spent most of the day napping. He did awesome overnight too and I was able to get the most sleep I've gotten since we arrived in Boston! This morning he was pretty fussy and couldn't get comfortable so I asked about possible pain and they gave him another dose of morphine. He's resting comfortably again.

I'm so relieved the biopsy is behind him. Now its waiting time. They're hoping to have some preliminary results back on Monday but the full pathology work up will take 5-7 days. So much is riding on those results that I swear I'm going crazy waiting :(

B's hemoglobin is stable today at 7.8 so that's good. That means he didn't have any bleeding from the biopsy. Since he was transfused Thursday that means today is day 2 with no transfusion. Hoping he starts to stretch longer in between at least. I really don't want to have to put him through another major surgery but if he doesn't stabilize then the splenectomy is really the best option. He'll get his second dose of Rituxan Monday so that will hopefully help!

B's benefit really seems to be coming together. I am absolutely humbled by the overwhelming response so far. I think it's safe to say that Bug's event has gone mini viral with over 5,000 invites going out in less than a day! Amazing. A huge thank you to all of you who have generously offered to make donations, seek donations, volunteered your time, are preparing baskets, or just spreading the word. It all means so very much to our family. Truly. TEAM BRADY committee -- you're doing such an awesome job and we're so grateful you're working so hard for Brady! A special thank you to ComDoc & Travis Weiss for doing all the tickets, flyers, stickers, etc absolutely free of charge. Everything looks great!!

Guess that's it for now. I'll update again as soon as we have some results from the biopsy.

Shari ♥

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